Research

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Autism Needs Assessment

HANDS in Autism® is conducting an Assessment of Needs in ASD Resources and Services in the State of Indiana. The data collected serves to inform the State and best guide recommendations for policies, processes, services, and programming as it pertains to autism spectrum disorder (ASD) in Indiana.

We are looking for participants from Indiana who are impacted by ASD, including but not limited to individuals with ASD over 18 years of age, their family members and caregivers, education personnel, medical professionals, justice and public safety personnel, community providers and employers. Potential participants can participate in an online, anonymous survey. The needs assessment survey takes approximately 10-15 minutes to complete.

To contribute to a more complete gap analysis, the HANDS in Autism® team and project coordinators will also be conducting individual interviews via phone or web conference and focus groups or live forums across a range of stakeholder groups with efforts made to ensure representation spanning the various regions of Indiana and beyond.

Express interest or request more information about the interviews and/or focus groups

Need support or alternate formats to complete the survey? Request accommodations online or contact us at hands@iupui.edu.

For more information about this study or to request necessary accommodations to complete this survey, contact Drs. Naomi Swiezy and/or Tiffany Neal, coordinators of this project, at hands@iupui.edu or call 317-274-2675.

Conducted by the HANDS in Autism® Interdisciplinary Training and Resource Center, Department of Psychiatry, IU School of Medicine on behalf of the Indiana Family and Social Services Administration (FSSA). Approved by the Indiana University IRB #2004206065. Primary Investigator: Naomi Swiezy, PhD, HSPP

How do we use Needs Assessment data?:

By completing the needs assessment survey, you provide input about the status of ASD and the services, resources and supports in your community. Your local perspective is invaluable in the State’s evaluation of ASD challenges and/or gaps in services and supports. Information collected as part of the needs assessment is used in determining state and local efforts necessary to expand the range of services and supports for individuals with ASD.

Indiana Comprehensive State Plan for Individuals with ASD

The Needs Assessment is used to inform the activities of the Indiana Interagency Coordinating Council (IIACC) and the content of the Indiana Comprehensive State Plan for Individuals with ASD. The State uses the Comprehensive State Plan to direct efforts and resources in addressing Indiana’s most pressing ASD needs. The Comprehensive State Plan currently focuses on the following goals: 

  • Family and Professional Partnerships
  • Access to Community-Based Services
  • Early Screening and Identification
  • Transition to Adulthood
  • Insurance (including Autism Mandates)
  • Justice System & Public Safety
  • Culturally Responsive Implementation

Information Sheets

Share information about the Needs Assessment using this flyer

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Autism Knowledge Survey

In an effort to explore the level of understanding and collaboration among autism community members, we are investigating the differences in beliefs and knowledge of Autism Spectrum Disorder across parents, educational personnel, medical professionals, and licensed therapists with varying levels of experience with autism. Please consider taking the survey knowing your input informs our work towards the fostering of a mutual level of understanding and more effective bridging of the systems of support that exist to help families, caregivers, and individuals affected by autism spectrum disorder. The survey will take approximately 5 minutes to complete with all responses being anonymous.

Take Survey 

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HANDS CTSI Core Services

Indiana University School of Medicine

Recruitment and/or evaluation of:

  • Individuals and families
  • School personnel
  • Healthcare providers
  • Community members

Consultation pertaining to:

  • Autism spectrum disorder (ASD), developmental or intellectual disabilities (DD/ID), and other neurodevelopmental disabilities
  • Applied Behavior Analysis (ABA) and special education
  • Behavioral and educational assessment and intervention
  • Implementation science and practice in the community
  • Caregiver, teacher and provider training
  • Program evaluation and gap analyses

Study participation

In our consultations, we implement:

  • Evidence-based practices
  • Up-to-date assessments in training and treatment contexts
  • Diversification of expertise to support professionals across settings

Development and use of behavioral and educational measures to assess:

  • Sample profiles
  • Impact of intervention at the level of individuals, families, service providers and other stakeholders
  • Impact of interventions at the community and/or state level
  • Change in knowledge about disabilities and evidence-based practices
  • Application of knowledge related to evidence-based practices
  • Implementation of evidence-based practices in educational, medical and other community practice settings
  • Analyses of needs and gaps related to services (quantitative and qualitative)

Our Immediate Audience

  • Families
  • Health and Mental health providers
  • School personnel
  • Justice and public safety personnel
  • Community service providers and advocacy leaders
  • State and regional leaders

We Have Worked with

  • Diverse departments within IU School of Medicine and IU Health
  • State-level and community partners across Indiana
  • University partners across the U.S.
  • Globally-based consumers (e.g., Singapore).

The range of provided services includes:

  1. reaching an extensive audience for recruitment
  2. conducting and/or guiding behavioral, educational, functional, and/or vocational assessments
  3. assisting program evaluation efforts targeted to a range of community stakeholders
  4. broadening community and research profiles and activities across participant groups
  5. sharing data and information related to extensive literature and statewide gap analyses related to ASD
  6. sharing and/or adapting of internally derived measures ranging in scope from gap analyses to knowledge and implementation of ABA-based interventions
  7. facilitating implementation science efforts to guide programming as well as mixed methods and other research designs
  8. consulting related to specialty content areas of:
    • applied behavior analysis (ABA)
    • special education
    • autism spectrum disorder (ASD) and other disabilities (e.g., ID/DD)
    • implementation science and practice in the community
    • caregiver, teacher, and provider skills training

Our Team

  • Clinical psychologist
  • School psychologist
  • Special educators
  • Instructional design
  • Multi-media professionals

Key Personnel

Why to Utilize HANDS Core

  • Over 15 years of experience
  • State-wide network of individuals, families, and professionals
  • Comprehensive services
  • Data-driven and research-based solutions
  • Needs-based support
  • Diverse interdisciplinary team

Our Foundational Principles

  • Interdisciplinarity
  • Collaboration
  • Systemic and systematic approach to solution ideation
  • Data-driven decision-making
  • Evidence-based solutions
  • Blending of evidence-based intervention strategies
  • Individualized approach

About HANDS in Autism®

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