Research

Autism Needs Assessment

HANDS in Autism® is conducting an Assessment of Needs in ASD Resources and Services in the State of Indiana. The data collected serves to inform the State and best guide recommendations for policies, processes, services, and programming as it pertains to autism spectrum disorder (ASD) in Indiana.

We are looking for participants from Indiana who are impacted by ASD, including but not limited to individuals with ASD over 18 years of age, their family members and caregivers, education personnel, medical professionals, justice and public safety personnel, community providers and employers. Potential participants can participate in an online, anonymous survey. The needs assessment survey takes approximately 10-15 minutes to complete.

The HANDS in Autism® team and project coordinators will also be conducting telephone interviews and/or web-based conference calls or live forums with individuals and/or interest groups from various regions of Indiana and beyond to gather additional information to contribute to a more complete gap analysis. All parts of this process are essential to collecting comprehensive feedback on the status of resources and services statewide. Your participation would be highly valued and all responses are strictly confidential.

For alternative ways to complete the survey, the HANDS in Autism® team or project coordinators can assist! Request accommodations online or contact us at hands@iupui.edu.

For more information about this study or to request necessary accommodations to complete this survey, contact Drs. Naomi Swiezy and/or Tiffany Neal, coordinators of this project, at hands@iupui.edu or call 317-274-2675.

Conducted by the HANDS in Autism® Interdisciplinary Training and Resource Center, Department of Psychiatry, IU School of Medicine on behalf of the Indiana Family and Social Services Administration (FSSA). Approved by the Indiana University IRB #2004206065. Primary Investigator: Naomi Swiezy, PhD, HSPP

How do we use Needs Assessment data?:

By completing the needs assessment survey, you provide input about the status of ASD and the services, resources and supports in your community. Your local perspective is invaluable in the State’s evaluation of ASD challenges and/or gaps in services and supports. Information collected as part of the needs assessment is used in determining state and local efforts necessary to expand the range of services and supports for individuals with ASD.

Indiana Comprehensive State Plan for Individuals with ASD

The Needs Assessment is used to inform the activities of the Indiana Interagency Coordinating Council (IIACC) and the content of the Indiana Comprehensive State Plan for Individuals with ASD. The State uses the Comprehensive State Plan to direct efforts and resources in addressing Indiana’s most pressing ASD needs. The Comprehensive State Plan currently focuses on the following goals: 

  • Family and Professional Partnerships
  • Access to Community-Based Services
  • Early Screening and Identification
  • Transition to Adulthood
  • Insurance (including Autism Mandates)
  • Justice System & Public Safety
  • Culturally Responsive Implementation

Information Sheets

Share information about the Needs Assessment using this flyer

Vocational and Transition Services Needs Assessment

In an effort to assess the needs for training, support, and resources, across levels and in practice regarding vocational and transitional services, the HANDS in Autism® Interdisciplinary Training and Resource Center in coordination with the Bureau of Rehabilitative Services is seeking your input! If you work with individuals who will access or have accessed transition services through your local school system, Vocational Rehabilitation, Bureau of Developmental Disabilities (BDDS), or other transition or adult service agencies, we would appreciate your participation in the Vocational and Transition Services Needs Assessment. Results from this survey will allow for a better understanding of the supports, training, services, and resources that are currently being used and accessed. These results will be used to help inform the successes, needs, and areas for improvement regarding transition, transitional planning, vocational rehabilitation, as well as other adult and community services.

Take Survey

Autism Knowledge Survey

In an effort to explore the level of understanding and collaboration among autism community members, we are investigating the differences in beliefs and knowledge of Autism Spectrum Disorder across parents, educational personnel, medical professionals, and licensed therapists with varying levels of experience with autism. Please consider taking the survey knowing your input informs our work towards the fostering of a mutual level of understanding and more effective bridging of the systems of support that exist to help families, caregivers, and individuals affected by autism spectrum disorder. The survey will take approximately 5 minutes to complete with all responses being anonymous.

Take Survey 

Research Opportunities at CSATC, IU School of Medicine and Riley Hospital for Children

The Christian Sarkine Autism Treatment Center (CSATC)  offers a number of opportunities for parents and individuals with ASD and related disabilities to participate in research.

Learn More